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Moorfields DR Dataset 005

Population Size

45,824

People

Years

2003

Associated BioSamples

Other

Geographic coverage

https://www.geonames.org/2648147/great-britain.html

Lead time

Not applicable

Summary

The DR Dataset at Moorfields Eye Hospital NHS Foundation Trust is a longitudinal dataset consisting of routinely collected imaging and clinical metadata from patients who have been referred to Moorfields via the NHS diabetic eye screening program.

Documentation

The Moorfields DR Dataset encompasses all patients who have been referred via the NHS diabetic eye screening program (DESP) to Moorfields Eye Hospital - a leading provider of eye health services in the UK and a world-class centre of excellence for ophthalmic research and education.

The DESP invites all diabetic patients aged 12 years or over to annual primary-care-based screening. Here, two-field fundus photography (one image centred on the macula and a second image centred on the optic disc) is acquired and graded according to the English Screening Programme for Diabetic Retinopathy standards. If criteria were met (R2, R3, R3, M1, or ungradable), patients are referred to hospital eye services and suspended from screening while under secondary care. Urgently referred patients (retinopathy grade R3) are to be seen within 2 weeks, and routinely referred patients within 10 weeks.

The earliest available screening records are from 2013, however, the dataset will include any imaging or clinical metadata that is available for these patients prior to that time (for example in patients who were initially monitored for the early manifestations of the disease). Also of note, this dataset will include data from both eyes in each case. For these reasons, the dataset will include longitudinal data from a wide range of diabetic eye disease.

Clinical metadata includes information regarding:

  • patient demographics
  • visual acuities (predominantly measured with Early Treatment Diabetic Retinopathy Study (ETDRS) charts)
  • diabetic retinopathy grading
  • intravitreal therapies and ocular surgeries

Additional information is provided in the ‘technical details’ tab.

The DR dataset includes eye imaging modalities, such as:

  • Optical coherence tomography (CSO, Heidelberg, Optos, Topcon, Zeiss)
  • Colour fundus photographs (Topcon, Zeiss)
  • Ultra-wide field photographs (Optos, Zeiss)
  • Iris photographs (CSO, Zeiss)
  • Keratoscope topography (CSO)
  • Infrared photographs (Heidelberg, Topcon, Zeiss)
  • Fluorescein angiography (Heidelberg, Optos, Topcon, Zeiss)
  • Indocyanine green angiography (Heidelberg, Optos, Topcon)
  • Fundus autofluorescence (Heidelberg, Optos, Zeiss)

Imaging data from CSO is subject to additional approvals.

As of July 2024, the dataset consisted of 91,009 eyes with 445,792 screening readings, and over 5,537,798 ophthalmic images. This is one of the largest single centre databases from patients with DR and covers more than a decade of follow-up for these patients.

Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
45824

Keywords

Diabetic Retinopathy, Diabetes Mellitus Type 1, Diabetes, diabetic eye disease, aflibercept, ranibizumab, Heidelberg, Topcon, Protocol, Test, Scan, Images, OCT, optic disc, Eylea, Lucentis, DMO, Eye drop, Eye condition, Laterality, Left, Right, Diagnosis, Ocular, Ophthalmology, Visual Acuity, Vision, MEH, IVT, Colour photo, Modality, Injection, Grading, Diabetes Mellitus Type 2, Non-Proliferative Diabetic Retinopathy, Proliferative Diabetic Retinopathy, Background Diabetic Retinopathy, National Screening Grading, Screening Programme, Screening, Referral, Zeiss

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

91,193 Eyes with 5,537,798 Images 91,009 Eyes with 445,792 Readings

45824

Patients

01 Jul 2024

Provenance

Purpose of dataset collection
Study
Collection source setting
Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients
Patient pathway description
The dataset is representative of the entire pathway for patients receiving treatment for diabetic retinopathy (DR) in the Medical Retina service at Moorfields Eye Hospital NHS Foundation Trust.
Image contrast
Not stated
Biological sample availability
Other

Structural Metadata

Details

Publishing frequency
Continuous
Version
1.0.0
Modified

08/10/2024

Citation Requirements
INSIGHT Health Data Hub

Coverage

Start date

01/01/2003

Time lag
1-2 weeks
Minimum age range
16
Maximum age range
100
Follow-up

10 Years

Accessibility

Language
en
Controlled vocabulary
SNOMED CT, DM+D, NHS NATIONAL CODES
Format
csv, image

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Not applicable
Access service description
INSIGHT is developing its data access environment for researchers. INSIGHT releases anonymised data, under strict data licence arrangements, to external secure environments, subject to appropriate due diligence and contracting.
Jurisdiction
GB-ENG
Data use limitation
General research use
Data use requirements
Project-specific restrictions
Data Controller
Moorfields Eye Hospital NHS Foundation Trust

Dataset Types: Health and disease


Collection Sources: Clinic, Secondary care - Accident and Emergency, Secondary care - Outpatients, Secondary care - In-patients