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UHB Eye Image Dataset Release 001

Population Size

Not reported
Population Size statistic card

Years

2007 - 2019

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

Geographic coverage statistic card

Lead time

2-6 months

Lead time statistic card

Summary

Routine clinical ophthalmology data for every patient who have been seen at Queen Elizabeth Hospital and the Birmingham, Solihull and Black Country Diabetic Retinopathy screening program at University Hospitals Birmingham NHS Foundation Trust.

Documentation

There are two data sets of eye scans available. The first of these is a set fundus images of which the are c. 7.0 million. The other is a set of OCT scans of which there are c. 440, 000.

This dataset contains routine clinical ophthalmology data for every patient who have been seen at Queen Elizabeth Hospital and the Birmingham, Solihull and Black Country Diabetic Retinopathy screening program at University Hospitals Birmingham NHS Foundation Trust, with longitudinal follow-up for 15 years. Key data included are: • Total number of patients. • Demographic information (including age, sex and ethnicity) • Past ocular history • Intravitreal injections • Length of time since eye diagnosis • Visual acuity • The national screening diabetic grade category (seven categories from R0M0 to R3M1) • Reason for sight and severe sight impairment

Geography University Hospitals Birmingham is set within the West Midlands and it has a catchment population of circa 5.9million. The region includes a diverse ethnic, and socio-economic mix, with a higher than UK average of minority ethnic groups. It has a large number of elderly residents but is the youngest population in the UK. There are particularly high rates of diabetes, physical inactivity, obesity, and smoking.

Data source: Ophthalmology department at Queen Elizabeth Hospital, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom. The Birmingham, Solihull and Black Country Data Set, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom. They manage over 200,000 patients, with longitudinal follow-up up to 15 years, making this the largest urban diabetic screening scheme in Europe.

Pathway: The routine secondary care follow-up in the hospital eye services for all ophthalmic diseases at Queen Elizabeth Hospital. The Birmingham, Solihull and Black Country dataset is representative of the patient pathway for community screening and grading of diabetic eye disease.

Dataset type

Health and disease

Dataset sub-type

Not applicable

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Events

Not reported

Count

31 Mar 2020

Provenance

Purpose of dataset collection

Care

Source of data extraction

EPR

Collection source setting

Secondary care - Outpatients, Community

Patient pathway description

Views of the retina are core to the Diabetic Retinal Screening Programme and as such are a record of the patient, and provide the evidence to a retinopathy grade

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Continuous

Version

4.0.0

Modified

08/10/2024

Distribution release date

31/03/2020

Coverage

Start date

01/01/2007

End date

15/12/2019

Time lag

2-4 weeks

Geographic coverage

United Kingdom, England, West Midlands

Maximum age range

110

Follow-up

6 - 12 Months

Accessibility

Language

en

Controlled vocabulary

NHS NATIONAL CODES

Format

JPEG, DICOM

Data Access Request

Dataset pipeline status

Not available

Time to dataset access

2-6 months

Access method category

TRE/SDE

Access service description

INSIGHT is developing it's data access environment for researchers. Until such time INSIGHT releases anonymised data,under data licence, into external secure environments.

Jurisdiction

GB-GBN

Data use limitation

General research use

Data use requirements

Project-specific restrictions

Data Controller

University Hospitals Birmingham NHS Foundation Trust

Dataset Types: Health and disease


Collection Sources: Secondary care - Outpatients, Community

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