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UHB Eye Image Dataset Release 001

Population Size

Not reported

Years

2007 - 2019

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

England

Lead time

Not applicable

Summary

Routine clinical ophthalmology data for every patient who have been seen at Queen Elizabeth Hospital and the Birmingham, Solihull and Black Country Diabetic Retinopathy screening program at University Hospitals Birmingham NHS Foundation Trust.

Documentation

There are two data sets of eye scans available. The first of these is a set fundus images of which the are c. 7.0 million. The other is a set of OCT scans of which there are c. 440, 000.

This dataset contains routine clinical ophthalmology data for every patient who have been seen at Queen Elizabeth Hospital and the Birmingham, Solihull and Black Country Diabetic Retinopathy screening program at University Hospitals Birmingham NHS Foundation Trust, with longitudinal follow-up for 15 years. Key data included are: • Total number of patients. • Demographic information (including age, sex and ethnicity) • Past ocular history • Intravitreal injections • Length of time since eye diagnosis • Visual acuity • The national screening diabetic grade category (seven categories from R0M0 to R3M1) • Reason for sight and severe sight impairment

Geography University Hospitals Birmingham is set within the West Midlands and it has a catchment population of circa 5.9million. The region includes a diverse ethnic, and socio-economic mix, with a higher than UK average of minority ethnic groups. It has a large number of elderly residents but is the youngest population in the UK. There are particularly high rates of diabetes, physical inactivity, obesity, and smoking.

Data source: Ophthalmology department at Queen Elizabeth Hospital, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom. The Birmingham, Solihull and Black Country Data Set, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom. They manage over 200, 000 patients, with longitudinal follow-up up to 15 years, making this the largest urban diabetic screening scheme in Europe.

Pathway: The routine secondary care follow-up in the hospital eye services for all ophthalmic diseases at Queen Elizabeth Hospital. The Birmingham, Solihull and Black Country dataset is representative of the patient pathway for community screening and grading of diabetic eye disease.

Dataset type
Health and disease
Dataset sub-type
Not applicable

Keywords

amblyopia, Age Related Macular Degeneration, Background Diabetic Retinopathy, Cataract, Cornea, Digital Surveillance, Clinically Significant Macular Oedema, Diabetic Retinopathy, Diabetic Maculopathy, Diabetes Mellitus Type 1, Diabetes Mellitus Type 2, National Screening Grading, Gestational Diabetes, Glaucoma, Haemorrhage, Hospital Eye Service, Images, Microaneurysm, Non-Proliferative Diabetic Retinopathy, New Vessels, Proliferative Diabetic Retinopathy, Optical Coherence Tomography, Orbit, Pregnancy, Retina, Referral, Screening, Screening Programme, Strabismus, Vision, Visual Acuity, OCT, Fundus, OCT images, Heidelberg, JPEG, JPG, Optical coherence tomography, Optical coherence tomography angiography, Fundus fluorescence angiography, spectralis, Heidelberg engineering, retinal photograph, fundus photograph, macula, optic disc

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Events

Not reported

Count

31 Mar 2020

Provenance

Purpose of dataset collection
Care
Source of data extraction
EPR
Collection source setting
Secondary care - Outpatients, Community
Patient pathway description
Views of the retina are core to the Diabetic Retinal Screening Programme and as such are a record of the patient, and provide the evidence to a retinopathy grade
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Continuous
Version
4.0.0
Modified

08/10/2024

Distribution release date

31/03/2020

Coverage

Start date

01/01/2007

End date

15/12/2019

Time lag
2-4 weeks
Geographic coverage
United Kingdom, England, West Midlands
Maximum age range
110
Follow-up
6 - 12 Months

Accessibility

Language
en
Controlled vocabulary
NHS NATIONAL CODES
Format
JPEG, DICOM

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Not applicable
Access method category
TRE/SDE
Access service description
INSIGHT is developing it's data access environment for researchers. Until such time INSIGHT releases anonymised data, under data licence, into external secure environments.
Jurisdiction
GB-GBN
Data use limitation
General research use
Data use requirements
Project-specific restrictions
Data Controller
University Hospitals Birmingham NHS Foundation Trust

Dataset Types: Health and disease


Collection Sources: No collection sources listed