HDR Gateway logo
HDR Gateway logo

Bookmarks

UHB Linked Diabetic Eye Disease in Acute Diabetic Hospital Admissions

Population Size

Not reported

Years

2000 - 2021

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

England

Lead time

Not applicable

Summary

Eye data for those identified by having an ED admission and acute care for their diabetes at QE Hospital, Birmingham. Key data included are demographics, duration of diabetes, outcomes, comorbidities, national screening diabetic grade and visual data.

Documentation

Background: Diabetes mellitus affects over 3.9 million people in the United Kingdom (UK), with over 2.6 million people in England alone. More than 1 million people living with diabetes are acutely admitted to hospital due to complications of their illness every year. Complications include Diabetic emergencies such as Diabetic Comas, Hypoglycaemia, Diabetic ketoacidosis and Diabetic Hyperosmolar Hyperglycaemic State. Diabetic retinopathy (DR) is a common microvascular complication of type 1 and type 2 diabetes and remains a major cause of vision loss and blindness in those of working age. This dataset includes acute all diabetic admissions to University Hospitals Birmingham NHS Trust from 2000 onwards with linked eye data including the national screening diabetic grade category (seven categories from R0M0 to R3M1) from the Birmingham, Solihull and Black Country DR screening program (a member of the National Health Service (NHS) Diabetic Eye Screening Programme) and the University Hospitals Birmingham NHS Trust Ophthalmology clinic at Queen Elizabeth Hospital, Birmingham .

Geography: The West Midlands has a population of 5.9 million. The region includes a diverse ethnic, and socio-economic mix, with a higher than UK average of minority ethnic groups. It has a large number of elderly residents but is the youngest population in the UK. There are particularly high rates of diabetes, physical inactivity, obesity, and smoking.

Data sources:

  1. The Birmingham, Solihull and Black Country Data Set, University Hospitals Birmingham NHS Foundation Trust, Birmingham, United Kingdom. They manage over 200,000 diabetic patients, with longitudinal follow-up up to 15 years, making this the largest urban diabetic eye screening scheme in Europe.
  2. The Electronic Health Records held at University Hospitals Birmingham NHS Foundation Trust is one of the largest NHS Trusts in England, providing direct acute services and specialist care across four hospital sites, with 2.2 million patient episodes per year, 2750 beds and 100 ITU beds. UHB runs a fully electronic healthcare record both for systemic disease as well as the Ophthalmology records.

Scope: All hospitalised patients admitted to UHB with a diabetes related health concern from 2000 onwards. Longitudinal and individually linked with their diabetic eye care from primary screening data and secondary care ophthalmology data including • Demographic information (including age, sex and ethnicity) • Diabetes status • Diabetes type • Length of time since diagnosis of diabetes • Visual acuity • The national screening diabetic screening grade category (seven categories from R0M0 to R3M1) • Diabetic eye clinical features • Reason for sight and severe sight impairment • ICD-10 and SNOMED-CT codes pertaining to diabetes • Diagnosis for the acute/emergency admission • Co-morbid conditions • Medications • Outcome

Dataset type
Health and disease
Dataset sub-type
Not applicable

Keywords

Background Diabetic Retinopathy, Digital Surveillance, Clinically Significant Macular Oedema, Diabetic Retinopathy, Diabetic Maculopathy, Diabetes Mellitus Type 1, Diabetes Mellitus Type 2, National Screening Grading, Gestational Diabetes, Haemorrhage, Hospital Eye Service, Images, Microaneurysm, Non-Proliferative Diabetic Retinopathy, New Vessels, Proliferative Diabetic Retinopathy, Optical Coherence Tomography, Pregnancy, Retina, Referral, Screening, Screening Programme, Vision, Visual Acuity, Hypoglycaemia, Hyperglycaemia, Diabetic Ketoacidosis, Hyperosmolar Hyperglycaemic Status, Diabetic Coma, Acidosis, Insulin, Injection, Pump, Blood Glucose, Fasting Blood Glucose, Dialysis, Glucagon, Glucose Intolerance, Haemoglobin A1C, Glycated Haemoglobin Test, Insulin Resistance, Macrovascular Compilations, Microvascular Complications, Pancreas, Pre-Diabetes, Autoimmune Disease, Sulfonylurea, Metformin, Glp-1 Inhibitors, Glp-1, Infection, Incretin Mimetics, Dpp-4 Inhibitors, Gliptins, Alpha Glucosidase Inhibitors, Glitazones, Diabetic Ulcer, Foot, Eye, Kidney, Brain, Nerves, Sepsis, Hospitalised, Urgent Care, Acute Care, Emergency, Surgery, Procedures, Outcomes, Discharge, Death, Secondary Care, Tertiary Care

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Events

Not applicable

30105

Count

17 Aug 2021

Provenance

Purpose of dataset collection
Care
Source of data extraction
EPR
Collection source setting
Secondary care - Outpatients, Secondary care - In-patients, Clinic, Secondary care - Accident and Emergency
Patient pathway description
This dataset is representative of the patient pathway for community screening of diabetic eye disease and grading.  This DES dataset is linked within this diabetic emergency hospital dataset to include those patients who were subsequently admitted to the Queen Elizabeth Hospital, University Hospitals Birmingham NHS Trust for complications of their diabetes.  This limits the dataset to only those patients who have been seen both in primary care screening and then subsequently in the hospital for diabetes.
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Annual
Version
1.0.0
Modified

08/10/2024

Distribution release date

17/08/2021

Citation Requirements
University Hospitals Birmingham NHS Foundation Trust

Coverage

Start date

01/01/2000

End date

17/08/2021

Time lag
2-4 weeks
Geographic coverage
United Kingdom, England, West Midlands
Minimum age range
12
Maximum age range
150
Follow-up

10 Years

Accessibility

Language
en
Controlled vocabulary
NHS NATIONAL CODES
Format
SQL, CSV

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Not applicable
Access method category
TRE/SDE
Access service description
INSIGHT adheres to HDRUK data access principles including the five SAFES; anonymised data is provided into an agreed Trusted Research Environment such as the PIONEER Microsoft Azure TRE at University Hospitals Birmingham NHSFT or equivalent external safe environment, under data license.
Jurisdiction
GB-ENG, GB-GB
Data use limitation
Research-specific restrictions
Data use requirements
Project-specific restrictions
Data Controller
University Hospitals Birmingham NHS Foundation Trust

Dataset Types: Health and disease


Collection Sources: Secondary care - Outpatients, Secondary care - In-patients, Clinic, Secondary care - Accident and Emergency