The Gateway Data Use Register is helping to improve transparency in the use of health data for research and provides a best practice example of how information about approved Data Uses is shared and managed. Its development is part of an ongoing project – led by the UK Health Data Research Alliance – to develop a core set of standards on data use registries. 

Building trust in the use of health data for research 

The Gateway Data Use Register allows Data Custodians to publicly show how their Datasets listed on the Gateway are being used, by whom and for what purpose. A Data Use entry includes a summary of the Research Project. The Gateway uses the term Data Use / Research Project, to aid understandability of the Entity for a wide audience.   
 
Anyone can search the register to view all Data Uses approved by Data Custodians, and these can be edited and updated as a project progresses. 

Researchers might be interested to see how Datasets listed on the Gateway are already being used to help inform their data request choices or to find possible collaborators, while the public and funding bodies might search the register to understand how researchers are using the data. 

Explore the growing number of Data Uses published on the Gateway Data Use Register. 

Within the Gateway you can now explore Data Uses / Research Projects that have used a Dataset within the individual metadata descriptions, as well as filter by ‘Data Use title’ on the search results page.