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Federated Data Sharing Appliance (FDSA)

Description

Many organisations possess valuable datasets that in theory could be accessed and analysed by researchers around the globe to answer complex questions about Alzheimer’s disease and related dementias (ADRD). But in reality, for a variety of regulatory and technological reasons, this data tends to be locked away in siloes. The FDSA, an integral part of the Alzheimer's Disease (AD) Workbench product suite, addresses this challenge. It provides both those holding data sets and researchers conducting analyses a foundation for widespread data sharing. Ultimately, FDSA will help the research community convert data into breakthroughs that transform people’s health. The FDSA is a plug-in for data stores that enables data contributors to easily publish remote datasets, making previously inaccessible research data available for discovery and analysis. Data contributors add their metadata to the AD Workbench catalog so researchers can discover, request, and access these remote datasets. FDSA supports interoperability across platforms while prioritising data security. Designed with a user-centric approach, it minimises the workload for data contributors while allowing them to manage data access requests and audit analyses in a streamlined way. Through the AD Workbench, researchers can discover FDSA-enabled remote datasets, request access to those datasets, use a tool called Query Builder to perform remote queries, and conduct research analyses from AD Workspace.

Results/Insights

Many organisations possess valuable datasets that in theory could be accessed and analysed by researchers around the globe to answer complex questions about Alzheimer’s disease and related dementias (ADRD). But in reality, for a variety of regulatory and technological reasons, this data tends to be locked away in siloes. The FDSA, an integral part of the Alzheimer's Disease (AD) Workbench product suite, addresses this challenge. It provides both those holding data sets and researchers conducting analyses a foundation for widespread data sharing. Ultimately, FDSA will help the research community convert data into breakthroughs that transform people’s health. The FDSA is a plug-in for data stores that enables data contributors to easily publish remote datasets, making previously inaccessible research data available for discovery and analysis. Data contributors add their metadata to the AD Workbench catalog so researchers can discover, request, and access these remote datasets. FDSA supports interoperability across platforms while prioritising data security. Designed with a user-centric approach, it minimises the workload for data contributors while allowing them to manage data access requests and audit analyses in a streamlined way. Through the AD Workbench, researchers can discover FDSA-enabled remote datasets, request access to those datasets, use a tool called Query Builder to perform remote queries, and conduct research analyses from AD Workspace.

Details

License

Available upon request

Last Updated

2024-10-25T13:31:30.000000Z