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National Neonatal Research Database (NNRD)

Population Size

1,200,000

People

Years

2007

Associated BioSamples

None/not available

Geographic coverage

United Kingdom

England

...see more

Lead time

Not applicable

Summary

Electronic health records for all neonatal unit admissions across England, Scotland and Wales as specified in the Neonatal Data Set (ISB 1595).

Documentation

The NNRD is a national resource holding real-world clinical data captured in the course of care on all admissions to NHS neonatal units in England, Wales, Scotland and the Isle of Man. Neonatal units submit data through their Electronic Patient Record system supplier. At present, there is information on around one million babies and 10 million days of care in the NNRD.

The NNRD is available to support audit, evaluations, bench-marking, quality improvement and clinical, epidemiological, health services and policy research to improve patient care and outcomes. Data in the NNRD comprise the Neonatal Data Set (ISB1595), an approved NHS Information Standard and include demographic details, daily records of interventions and treatments throughout the neonatal inpatient stay, information on diagnoses and outcomes, and follow-up health status at age two years.

The Neonatal Data Analysis Unit was founded to support the management and development of the National Neonatal Research Database (NNRD) established in 2007 by Professor Modi, and related research.

More information can be found at https://www.imperial.ac.uk/neonatal-data-analysis-unit

Dataset type
Health and disease
Dataset sub-type
Not applicable
Dataset population size
1200000

Keywords

neonatal inpatient stay, epidemiological, Neonatal Data Set, patient care and outcomes, policy research, clinical, quality improvement, health services, daily records, National Neonatal Research Database, follow-up health status

Observations

Observed Node
Disambiguating Description
Measured Value
Measured Property
Observation Date

Persons

Data on over 1.2 million babies, with approximately 25,000 new infant records added quarterly.

1200000

Count

14 Dec 2021

Provenance

Purpose of dataset collection
Care
Source of data extraction
EPR
Collection source setting
Secondary care - In-patients
Patient pathway description
Neonatal Unit stay
Image contrast
Not stated
Biological sample availability
None/not available

Structural Metadata

Details

Publishing frequency
Quarterly
Version
10.0.0
Modified

08/10/2024

Distribution release date

01/04/2010

Citation Requirements
We acknowledge the use of the UK National Neonatal Research Database (https://www.imperial.ac.uk/neonatal-data-analysis-unit/neonatal-data-analysis-unit/), established and led by Professor Neena Modi and her research group at Imperial College London, the contribution of neonatal units that collectively form the UK Neonatal Collaborative ( https://www.imperial.ac.uk/neonatal-data-analysis-unit/neonatal-data-analysis-unit/contributing-to-the-nnrd/), and their lead clinicians.

Coverage

Start date

01/01/2007

Time lag
2-6 months
Geographic coverage
United Kingdom, England, Wales, Scotland, Isle of Man
Maximum age range
1
Follow-up
1 - 10 Years

Accessibility

Language
en
Controlled vocabulary
NHS NATIONAL CODES
Format
SQL, csv

Data Access Request

Dataset pipeline status
Not available
Time to dataset access
Not applicable
Jurisdiction
GB
Data use limitation
No restriction
Data use requirements
Ethics approval required,Project-specific restrictions,User-specific restriction
Data Controller
Professor Neena Modi, Imperial College London
Data Processor
Professor Neena Modi, Imperial College London

Dataset Types: Health and disease


Collection Sources: Secondary care - In-patients

Publications about this dataset