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National Neonatal Research Database (NNRD)

Population Size

1,200,000

People

Population Size statistic card

Years

2007

Years statistic card

Associated BioSamples

None/not available

Associated BioSamples statistic card

Geographic coverage

United Kingdom

England

...see more

Geographic coverage statistic card

Lead time

1-2 months

Lead time statistic card

Summary

Electronic health records for all neonatal unit admissions across England, Scotland and Wales as specified in the Neonatal Data Set (ISB 1595).

Documentation

The NNRD is a national resource holding real-world clinical data captured in the course of care on all admissions to NHS neonatal units in England, Wales, Scotland and the Isle of Man. Neonatal units submit data through their Electronic Patient Record system supplier. At present, there is information on around one million babies and 10 million days of care in the NNRD.

The NNRD is available to support audit, evaluations, bench-marking, quality improvement and clinical, epidemiological, health services and policy research to improve patient care and outcomes. Data in the NNRD comprise the Neonatal Data Set (ISB1595), an approved NHS Information Standard and include demographic details, daily records of interventions and treatments throughout the neonatal inpatient stay, information on diagnoses and outcomes, and follow-up health status at age two years.

The Neonatal Data Analysis Unit was founded to support the management and development of the National Neonatal Research Database (NNRD) established in 2007 by Professor Modi, and related research.

More information can be found at https://www.imperial.ac.uk/neonatal-data-analysis-unit

Dataset type

Health and disease

Dataset sub-type

Not applicable

Dataset population size

1200000

Keywords

Observations

Observed Node

Disambiguating Description

Measured Value

Measured Property

Observation Date

Persons

Data on over 1.2 million babies, with approximately 25,000 new infant records added quarterly.

1200000

Count

14 Dec 2021

Provenance

Purpose of dataset collection

Care

Source of data extraction

EPR

Collection source setting

Secondary care - In-patients

Patient pathway description

Neonatal Unit stay

Image contrast

Not stated

Biological sample availability

None/not available

Structural Metadata

Details

Publishing frequency

Quarterly

Version

10.0.0

Modified

08/10/2024

Distribution release date

01/04/2010

Citation Requirements

We acknowledge the use of the UK National Neonatal Research Database (https://www.imperial.ac.uk/neonatal-data-analysis-unit/neonatal-data-analysis-unit/), established and led by Professor Neena Modi and her research group at Imperial College London, the contribution of neonatal units that collectively form the UK Neonatal Collaborative ( https://www.imperial.ac.uk/neonatal-data-analysis-unit/neonatal-data-analysis-unit/contributing-to-the-nnrd/), and their lead clinicians.

Coverage

Start date

01/01/2007

Time lag

2-6 months

Geographic coverage

United Kingdom, England, Wales, Scotland, Isle of Man

Maximum age range

1

Follow-up

1 - 10 Years

Accessibility

Language

en

Controlled vocabulary

NHS NATIONAL CODES

Format

SQL, csv

Data Access Request

Dataset pipeline status

Not available

Time to dataset access

1-2 months

Jurisdiction

GB

Data use limitation

No restriction

Data use requirements

Ethics approval required,Project-specific restrictions,User-specific restriction

Data Controller

Professor Neena Modi, Imperial College London

Data Processor

Professor Neena Modi, Imperial College London

Dataset Types: Health and disease


Collection Sources: Secondary care - In-patients

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