Bookmarks
The UK Kidney Association
Introduction
{"type":"doc","content":[{"type":"paragraph","content":[{"type":"text","text":"The UK Kidney Association (UKKA) is the oldest continuously active nephrology society in the world, gaining its current name after the merger of the British Renal Society and the Renal Association in 2021. As the leading professional body for the UK kidney community, the UKKA is dedicated to improving lives by supporting professionals in the delivery of kidney care and research. We have over 2,000 doctors, scientists, and multi-professional team members. "}]},{"type":"paragraph","content":[{"type":"text","text":"The UKKA is home to the UK Renal Registry (UKRR). The UKRR was set up in 1995 to record and analyse longitudinal health data about children and adults with kidney disease in the UK for audit, quality improvement and research purposes."}]},{"type":"paragraph","content":[{"type":"text","text":"Clinical data flow predominantly from the UK’s kidney centres and hospital laboratories, and patient-reported data are captured via surveys. The UKRR database is linked with a number of other health databases, including "},{"type":"text","marks":[{"type":"link","attrs":{"href":"https://gbr01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.nhsbt.nhs.uk%2F&data=05%7C02%7Cclara.fennessy%40hdruk.ac.uk%7C23daef964d044ef3237408dd54e20d07%7C844cacb1702742639d8a18faa5bf0839%7C1%7C0%7C638760052075552803%7CUnknown%7CTWFpbGZsb3d8eyJFbXB0eU1hcGkiOnRydWUsIlYiOiIwLjAuMDAwMCIsIlAiOiJXaW4zMiIsIkFOIjoiTWFpbCIsIldUIjoyfQ%3D%3D%7C0%7C%7C%7C&sdata=8XrVhMm5EALPtXnokP8HpcQ%2FRHcXiSYzKl7rzKkXEg0%3D&reserved=0","target":"_blank","rel":"noopener noreferrer nofollow","class":null}}],"text":"NHS Blood and Transplant"},{"type":"text","text":", "},{"type":"text","marks":[{"type":"link","attrs":{"href":"https://gbr01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fdigital.nhs.uk%2F&data=05%7C02%7Cclara.fennessy%40hdruk.ac.uk%7C23daef964d044ef3237408dd54e20d07%7C844cacb1702742639d8a18faa5bf0839%7C1%7C0%7C638760052075574705%7CUnknown%7CTWFpbGZsb3d8eyJFbXB0eU1hcGkiOnRydWUsIlYiOiIwLjAuMDAwMCIsIlAiOiJXaW4zMiIsIkFOIjoiTWFpbCIsIldUIjoyfQ%3D%3D%7C0%7C%7C%7C&sdata=kE7%2BoJulU9Up7QT41mUarovSfbcXCv0RSCxuHlXqtuY%3D&reserved=0","target":"_blank","rel":"noopener noreferrer nofollow","class":null}}],"text":"NHS Digital"},{"type":"text","text":", "},{"type":"text","marks":[{"type":"link","attrs":{"href":"https://gbr01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.gov.uk%2Fgovernment%2Forganisations%2Fpublic-health-england&data=05%7C02%7Cclara.fennessy%40hdruk.ac.uk%7C23daef964d044ef3237408dd54e20d07%7C844cacb1702742639d8a18faa5bf0839%7C1%7C0%7C638760052075587147%7CUnknown%7CTWFpbGZsb3d8eyJFbXB0eU1hcGkiOnRydWUsIlYiOiIwLjAuMDAwMCIsIlAiOiJXaW4zMiIsIkFOIjoiTWFpbCIsIldUIjoyfQ%3D%3D%7C0%7C%7C%7C&sdata=XzDz9IgBAHTy6K2ctmRCOJ4uaC8CvXQTeaFgsdnEFvc%3D&reserved=0","target":"_blank","rel":"noopener noreferrer nofollow","class":null}}],"text":"Public Health England"},{"type":"text","text":" and "},{"type":"text","marks":[{"type":"link","attrs":{"href":"https://gbr01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fnwis.nhs.wales%2F&data=05%7C02%7Cclara.fennessy%40hdruk.ac.uk%7C23daef964d044ef3237408dd54e20d07%7C844cacb1702742639d8a18faa5bf0839%7C1%7C0%7C638760052075599135%7CUnknown%7CTWFpbGZsb3d8eyJFbXB0eU1hcGkiOnRydWUsIlYiOiIwLjAuMDAwMCIsIlAiOiJXaW4zMiIsIkFOIjoiTWFpbCIsIldUIjoyfQ%3D%3D%7C0%7C%7C%7C&sdata=as%2BwGo4NbWoTObD6eCMLYta8n0HR24de0zXTZP%2Fjmf0%3D&reserved=0","target":"_blank","rel":"noopener noreferrer nofollow","class":null}}],"text":"NHS Wales Informatics Service"},{"type":"text","text":"."}]},{"type":"paragraph","content":[{"type":"text","text":"The UKRR team manages data collection, analysis, and reporting on 3 main areas:"}]},{"type":"orderedList","attrs":{"start":1,"type":"A"},"content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Children and adults in the UK on Kidney Replacement Therapy (approximately 70,000 people each year)"}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Acute Kidney Injury episodes reported in the UK (approximately 500,000 people each year)"}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Children and adults with advanced Chronic Kidney Disease in England and Wales."}]}]}]}]}