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The UK Kidney Association

Introduction

https://www.ukkidney.org/

Useful links:

https://www.ukkidney.org/audit-research/how-access-data/ukrr-data

Datasets(5)

UK Renal Registry - COVID-19 dataset

Dataset population size: 20,800

Health and disease

UK Renal Registry - Your Health Survey dataset

Dataset population size: 3,200

Health and disease

UK Renal Registry - AKI Lab Alerts Dataset

Dataset population size: 3,600,000

Health and disease

UK Renal Registry - Kidney PREM dataset

Dataset population size: 60,000

Health and disease

UK Renal Registry - CKD and AKI on Dialysis Dataset

Dataset population size: 300,000

Health and disease

Data Uses(100)

END STAGE KIDNEY DISEASE FROM GLOMERULONEPHRITIS IN THE UK – A REGISTRY BASED STUDY (GN-UNITY)The UK Kidney Association

Manchester University NHS Foundation Trust, University of Manchester

EMPA-KIDNEY – the study of heart and kidney protection with empagliflozin The UK Kidney Association

Nuffield Department of Population Health, University of Oxford

Pragmatic randomised trial of High Or Standard Phosphate Targets in End-stage kidney disease (PHOSPHATE)The UK Kidney Association

Cambridge University Hospitals Foundation Trust, Cambridge University

Application of machine learning and artificial intelligence for validation of real time data for patients with chronic kidney disease (CKD)The UK Kidney Association

University of Southampton

Defining strategies to address the supply and demand of deceased donor kidney transplantation with optimised equity of access The UK Kidney Association

Liverpool University Hospital NHS Trust, University of Liverpool

Standardisation and description of medication data for patients with chronic kidney disease on kidney replacement therapy (KRT)The UK Kidney Association

University of Southampton

The impact of COVID19 on acute kidney injury (AKI) in the UK -a descriptive analysis from the UKRR The UK Kidney Association

UK Renal Registry/London School of Hygeine and Tropical Medicine

Describing regional variations in paediatric nephrology service provision using registry and electronic health record data.The UK Kidney Association

UK Renal Registry, British Association for Paediatric Nephrology, University Hospitals Bristol & Weston NHS Foundation Trust.

Comparison of sociodemographic features and mortality of individuals on haemodialysis treatment who test positive for SARS-CoV-2 during wave 1 and wave 2 The UK Kidney Association

Uk Renal Registry

Comorbidity in children with end-stage kidney disease (ESKD): an audit of UK Renal Registry data with Hospital Episode Statistics linkage.The UK Kidney Association

UK Renal Registry

Does case mix explain between-centre variation in comorbidity in paediatric patients?The UK Kidney Association

University of Bristol

Recent trends in renal replacement therapy in Europe: ERA-EDTA Registry data from 2007 to 2016 The UK Kidney Association

ERA Registry

Distribution of primary renal diseases among men and women initiating kidney replacement therapy The UK Kidney Association

ERA Registry

What are the determinants of PD technique failure and what is the impact of this on uptake and retention of patients to peritoneal dialysis?The UK Kidney Association

UHNM NHS Trust

Kidney Transplantation in young Children: Association between body weight and outcome – a Report from the ESPN/ERA-EDTA Registry The UK Kidney Association

ERA Registry

Patient survival in children treated with chronic renal replacement therapy – a global comparison between renal registries The UK Kidney Association

ERA Registry

Trends in home dialysis in Europe over the period 2007 to 2016 The UK Kidney Association

ERA Registry

International comparison of time trends in kidney transplantation rates and transplant recipient characteristics in 12 European countries.The UK Kidney Association

ERA Registry

An instrumental variable analysis for investigating erythropoietin therapy for treating anaemia among haemodialysis patients The UK Kidney Association

University of Bristol

Death, recovery and end-stage kidney disease 90 days after starting dialysis The UK Kidney Association

University of Bristol

Risk factors for decline and loss of kidney transplant function among UK children and young adults.The UK Kidney Association

University of Bristol

Trends in excess mortality of adult patients on renal replacement therapy compared to the general population in Europe.The UK Kidney Association

ERA Registry

Multi-state Clinical Prediction Models in Renal Replacement Therapy The UK Kidney Association

University of Manchester

Outcome of paediatric kidney transplantation in Europe- results from the ESPN/ERA-EDTA Registry The UK Kidney Association

ERA Registry

The changing trends and outcomes in the epidemiology of paediatric renal replacement therapy in Europe: data from the ESPN/ERA-EDTA Registry The UK Kidney Association

ERA Registry

International comparison of patient survival after start of renal replacement therapy in 12 countries in Europe The UK Kidney Association

ERA Registry

International comparison of patient and graft survival after kidney transplantation in 12 European countries The UK Kidney Association

ERA Registry

Recovery of renal function in the ERA-EDTA Registry The UK Kidney Association

ERA Registry

BAPN/UK Renal Registry Paediatric RRT Mortality Audit: What is the completeness and accuracy of UK renal registry data for causes of death?The UK Kidney Association

Manchester University NHS Foundation Trust

Risk of Mortality Post Switch from PD to HD: The INTEGRATED Group The UK Kidney Association

ERA Registry

Describing national variation between the outcomes for patients with AKI transferred from non-renal to renal centres for specialist input compared to those with first presentation to renal centre The UK Kidney Association

UK Renal Registry

Changes in clinical parameters related to the transition from dialysis to kidney transplantation The UK Kidney Association

ERA Registry

Patient activation, symptom burden and quality of life in the TP-CKD cohort The UK Kidney Association

University of Leicester

Does socioeconomic status or geographic location play a role in access to nephrology services for UK children with chronic kidney disease?The UK Kidney Association

University of Bristol and UK Renal Registry

Impacts of ambient heat exposure on Acute Kidney Injury The UK Kidney Association

London School of Hygiene & Tropical Medicine

Acute Kidney Injury in UK children The UK Kidney Association

UK Renal Registry

Understanding the relationship between symptom burden and quality of life in chronic kidney disease: a UK cohort study in 3,325 patients The UK Kidney Association

University of Manchester

Lower limb amputation within 5 years of commencing dialysis for patients in England: GIRFT retrospective analysis of linked renal registry and hospital episode statistics data 2001-2017 The UK Kidney Association

UK Renal Registry

UK Chinese population with kidney failure: patient characteristics and treatment modalities The UK Kidney Association

University of Bristol

Clinical Epidemiology of Renal Replacement Therapy for Rare Renal Diseases in the United Kingdom The UK Kidney Association

Royal Free Hospital

English transplant centre variation in early (30 day) and late (365 day) readmission rates following renal transplantation – a UK Renal Registry and GIRFT analysis of Hospital Episode Statistics (HES)The UK Kidney Association

UK Renal Registry

Seasonal variation of AKI incident rate The UK Kidney Association

UK Renal Registry

Annual burden of emergency hospital admissions for patients on Renal Replacement Therapy (RRT) in England – GIRFT analysis of linked UK Renal Registry (UKRR) and Hospital Episodes Statistics (HES) data over a 5 year period 2013-2017 The UK Kidney Association

UK Renal Registry

Estimating the prevalence of CKD stages 4 and 5 The UK Kidney Association

UK Renal Registry

Prediction of technique survival among peritoneal dialysis patients: An Artificial Intellegence Approach The UK Kidney Association

University Hospitals Coventry and Warwickshire

Validation of cause of death in the UKRR data against hospitalisation data for RRT patients in England and Wales The UK Kidney Association

UK Renal Registry

Comparison of case-mix adjusted incidence, length of stay and in-hospital Mortality of secondary care patients with hospital acquired AKI at acute care providers in England The UK Kidney Association

UK Renal Registry

Long-term health complications after SARS-CoV-2 infection in people with pre-existing chronic kidney disease The UK Kidney Association

London School of Hygiene & Tropical Medicine

FAKTOR: Failing Kidney Transplant Outcomes Registry analysis The UK Kidney Association

University of Bristol and North Bristol NHS Trust

The High-volume HDF vs High-flux HD Registry Study The UK Kidney Association

University of Bristol

Variation in centre-specific survival in dialysis patients starting RRT in England and Wales adjusted for case-mix The UK Kidney Association

UK Renal Registry

The uncaptured potential AKI patients through the NHSE AKI algorithm The UK Kidney Association

UK Renal Registry

Healthcare needs for people with chronic kidney disease before and during the COVID-19 era The UK Kidney Association

London School of Hygiene & Tropical Medicine

Methods of accounting variation of AKI incident rates among hospitals The UK Kidney Association

UK Renal Registry

BioImpedance Spectroscopy To maintain Renal Output: the BISTRO Trial The UK Kidney Association

Keele University

Do outcomes for hospitalized patients with an AKI vary across specialties in England?The UK Kidney Association

UK Renal Registry

Inequality of PD Initiation based on ethnicity and SE status.The UK Kidney Association

UK Renal Registry

Variation of AKI incident rate The UK Kidney Association

UK Renal Registry

Investigating inequalities in access to paediatric kidney transplantation.The UK Kidney Association

University of Bristol and UK Renal Registry

Waitlist activation and transplantation for patients with kidney failure The UK Kidney Association

The University of Adelaide

Consistency and implementation of the NHS England AKI patient safety alert algorithm in embedded laboratories The UK Kidney Association

University of Bristol

Inter-CEPt Study - Intervening to eliminate the centre effect variation in home dialysis use The UK Kidney Association

Keele University

A comparative cohort study of the duration of dialysis in children and the association with mortality and allograft survival after transplantation.The UK Kidney Association

London School of Hygiene & Tropical Medicine

Randomised Evaluation of COVID-19 Therapy (RECOVERY)The UK Kidney Association

University of Oxford

NHS England in-centre haemodialysis patient transport cost modelling The UK Kidney Association

NHS England

Standard versus Accelerated initiation of Renal Replacement Therapy in Acute Kidney Injury (STARRT-AKI): A Multi-Centre, Randomized, Controlled Trial The UK Kidney Association

Guy's & St Thomas' Hospital

Pregnancy-associated progression of chronic kidney Disease: development of a Clinical predictive Tool (PREDICT) UK Renal Registry Dataset The UK Kidney Association

King's College London

Application of Functional Renal MRI to improve assessment of chronic kidney disease (AFiRM study) The UK Kidney Association

University Hospitals of Derby & Burton NHS Fountdation Trust

The use of cancer immunotherapy in kidney transplant recipients: how often and at what risk?The UK Kidney Association

University of Bristol, North Bristol NHS Trust

What methods work best for COVID19 outbreak surveillance in renal units? An experience of the UK Renal Registry The UK Kidney Association

UK Renal Registry

Length of stay for patients with hospital acquired Acute Kidney Injury (AKI) in England The UK Kidney Association

UK Renal Registry

Identifying children with Acute Kidney Injury: comparing clinical indicator alerts with electronic health record data The UK Kidney Association

University of Bristol and UK Renal Registry

Acute Kidney Injury identification: use of electronic AKI alerts versus electronic health records in Hospital Episode Statistics and related patient outcomes The UK Kidney Association

UK Renal Registry

Outcomes of patients with COVID-19 on kidney replacement therapy (KRT): a comparison among modalities in England The UK Kidney Association

UK Renal Registry

COVID-19 testing and infection among English children and young adults with advanced chronic kidney disease using Public Health England and UK Renal Registry linked data.The UK Kidney Association

University of Bristol and UK Renal Registry

Can comorbidity derived from administrative hospital systems replace comorbidity data collected by registries: a comparison of comorbidity data in England and Wales in the UK Renal Registry (UKRR), hospital statistics and the Access to Transplant and Transplant Outcome Measures (ATTOM) study The UK Kidney Association

UK Renal Registry

The association of duration of acute kidney injury with subsequent need of chronic dialysis or death The UK Kidney Association

London School of Hygiene & Tropical Medicine

Outcome of paediatric patients starting kidney replacement therapy after cancer treatment The UK Kidney Association

ERA Registry

Investigating the prevalence of kidney failure and KRT codes within electronic health records for children with established kidney failure The UK Kidney Association

University of Bristol and UK Renal Registry

The impact of the COVID-19 pandemic on UK dialysis modality use and its relation to demographic factors including ethnicity.The UK Kidney Association

Sheffield Teaching Hospitals NHS

Incidence and outcomes of in-hospital cardiac arrests in the United Kingdom kidney replacement therapy population.The UK Kidney Association

University of Bristol

Investigating whether sex is associated with predialysis AKI, RRT start, and death amongst patients with advanced CKD under renal care The UK Kidney Association

London School of Hygiene & Tropical Medicine

Kidney Failure Risk Equation to triage patients with failing transplants for low clearance care The UK Kidney Association

UK Renal Registry

Long term kidney Replacement Therapy after AKI in children The UK Kidney Association

Southampton Children’s Hospital

Randomised Evaluation of Sodium Dialysate Levels on Vascular Events (RESOLVE) – UK The UK Kidney Association

University College London

COVID-19 antiviral treatment in people with advanced CKD and on RRT The UK Kidney Association

UK Renal Registry

AKI Episodes in paediatric renal transplant patients The UK Kidney Association

Great Ormond Street Hospital for Children

A prospective surveillance study of conservatively managed children with end-stage kidney disease in the United Kingdom and Republic of Ireland.The UK Kidney Association

UK Renal Registry

Which adult patients with kidney failure use Patient Knows Best? Understanding the demographic distribution of PKB users to support patient activation and education. The UK Kidney Association

UK Renal Registry

Improving kidney failure risk calculations in ethnically diverse populations The UK Kidney Association

UK Renal Registry

Which families of children with kidney failure use Patient Knows Best? Understanding the demographic distribution of PKB users to support patient activation and education. The UK Kidney Association

UK Renal Registry

Predicting future need of KRT – descriptive analyses and prediction model The UK Kidney Association

UK Renal Registry

Changing causes of mortality in kidney dialysis patients The UK Kidney Association

University College London

Estimated glomerular filtration rate (eGFR) decline in kidney tranplantation: Analysis of factors associated with GFR slope The UK Kidney Association

Oxford University Hospitals

Investigating the modifiable psychosocial variables influencing access to and outcomes after kidney transplantation in Children The UK Kidney Association

Great Ormond Street Hospital for Children NHS Foundation Trust

REnal Protection Against Ischaemia-Reperfusion in transplantation (REPAIR) - 2 The UK Kidney Association

University of Plymouth (Sponsor) Collaboration with University Hospitals Southampton & LSHTM

Hospitalisation after paediatric kidney transplant: a multicentre retrospective review The UK Kidney Association

Southampton Children’s Hospital

Equity assessment of timely presentation to renal services in England The UK Kidney Association

Salford Royal Hospital, Northern Care Alliance, Manchester And University of Manchester

Renal Operational Delivery Unit The UK Kidney Association

The Strategy Unit

Investigating kidney outcomes for children with congenital anomalies in England The UK Kidney Association

University of Brisstol Medical School, UKRR

Associated publications(1)

Evaluation of the effectiveness of remdesivir in severe COVID-19 using observational data from a prospective national cohort study

Arch BN, Kovacs D, Scott JT, Jones AP, Harrison EM, Rosala-Hallas A, Gamble CG, Openshaw PJM, Baillie JK, Semple MG.

Associated collections(1)

Research Study Cohorts on the Gateway

The UK Kidney Association

Datasets

Collections

Analysis Scripts & Software

Data Uses

Publications