Data Custodian Area

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NIHR Biomedical Research Centres

NIHR Biomedical Research Centres

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Data Custodian

(20)

NIHR Birmingham BRC

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NIHR Southampton BRC

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NIHR Oxford BRC

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NIHR Manchester BRC

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NIHR Bioresource BRC

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NIHR Barts Biomedical Research Centre

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NIHR Moorfields Biomedical Research Centre

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Biomedical Research Centre at The Royal Marsden and the ICR

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NIHR Newcastle Biomedical Research Centre

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NIHR Great Ormond Street Hospital Biomedical Research Centre

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NIHR Exeter Biomedical Research Centre

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NIHR Maudsley Biomedical Research Centre

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NIHR UCLH Biomedical Research Centre: SAFEHR

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NIHR Oxford Health Biomedical Research Centre

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NIHR Cambridge Biomedical Research Centre

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NIHR Leicester Biomedical Research Centre

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NIHR Bristol Biomedical Research Centre

Datasets (5)

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NIHR Sheffield Biomedical Research Centre

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NIHR Leeds Biomedical Research Centre

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NIHR Imperial Biomedical Research Centre – Digital Health

Datasets (2)

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Collections (16)

Datasets

(7)

Imperial Health Knowledge Bank (IHKB) - Routinly captured health dataset NIHR Imperial Biomedical Research Centre – Digital Health

Dataset population size: Unknown

Health and disease, Treatments/Interventions, Measurements/Tests, Omics, Registry

Imperial Health Knowledge Bank (IHKB) Blood Samples with Linked Health Data NIHR Imperial Biomedical Research Centre – Digital Health

Dataset population size: Unknown

Health and disease, Omics, Registry

The Human Genotype-Phenotype Map NIHR Bristol Biomedical Research Centre0

Health and disease, Omics

OpenGWAS NIHR Bristol Biomedical Research Centre

Dataset population size: 1,000,000

Health and disease, Measurements/Tests, Omics

Lotus NIHR Bristol Biomedical Research Centre

Dataset population size: 200

Treatments/Interventions

BREATHE: Bristol Airways Cohort NIHR Bristol Biomedical Research Centre0

Health and disease

The SPOTLIGHT Study NIHR Bristol Biomedical Research Centre0

Health and disease

Associated data uses

(104)

PAN COVID linkage to UK NNRD Neonatal Data Analysis Unit - Imperial College London

Imperial College London

ID 94: De-identified Data Access Extension Request: To assess the maternal vaccination uptake in the Northwest (NWL) London Secure Data Environment (SDE)

Imperial College London (ICL)

ID 141: Extension: Volunteering Programme Evaluation – NWL ICS London Secure Data Environment (SDE)

Imperial College Health Partners (ICHP)

ID 185: Characterising and preventing multimorbidity in NW London with linkage to the LOLIPOP cohort London Secure Data Environment (SDE)

Imperial College London (ICL)

ID 187: Extension: NWL ICS Population health Management and Inequalities CORE20PLUS5 research London Secure Data Environment (SDE)

Imperial College Health Partners (ICHP)

ID 195: Extension: Volunteering Programme Evaluation – NWL ICS London Secure Data Environment (SDE)

Imperial College Health Partners (ICHP)

ID 244: Provision of Neuro rehabilitation services in NWL London Secure Data Environment (SDE)

Imperial College London (ICL)

ID 251: Improving the UEC pathway across NWL using population health data London Secure Data Environment (SDE)

McKinsey and Company

ID 262: Improving management of severe Asthma in North West London (NWL) through Trust Primary Care networks (PCN) joint working model of virtual multidisciplinary patients review.London Secure Data Environment (SDE)

Imperial College Health Partners (ICHP)

ID 276: Extension: Mapping the clinical journey of patients with Chronic Kidney Disease (CKD) in North West London (NWL)London Secure Data Environment (SDE)

Imperial College Healthcare NHS Trust (ICHT) / Imperial College London (ICL)

ID 302: NWL Population Health Accelerator (Hypertension) - approved subject to amending the form to reflect committee members' comments London Secure Data Environment (SDE)

Boston Consulting Group

ID 332: Extension: Mapping the clinical journey of patients with Chronic Kidney Disease (CKD) in North West London (NWL)London Secure Data Environment (SDE)

Imperial College Healthcare NHS Trust (ICHT) / Imperial College London (ICL)

ID 342: Uncovering Patterns of Falls Risk Factors: A Cross-sectional Analysis of Integrated Electronic Health Records in North-West London London Secure Data Environment (SDE)

Imperial College London (ICL)

ID 350: The impacts of air quality on preschool wheeze, asthma, and ADHD in children and young people in North West London London Secure Data Environment (SDE)

Imperial College London (ICL)

ID 352: North West London Integrated Care Board (ICB) Research And Innovation Project.London Secure Data Environment (SDE)

Imperial College Health Partners (ICHP)

ID 364: Improving Access to Same-Day Non-Complex Primary Care in North West London London Secure Data Environment (SDE)

KPMG

ID 365: Networked Data Lab: Topic 4 - Exploring the role of Intermediate Care pathways in patient discharge, readmission rates and primary, secondary and social care usage across NWL.London Secure Data Environment (SDE)

Imperial College Health Partners (ICHP)

ID 368: Hepatitis C Risks for Patients within North West London - conditionally approved subject to amending 1.4 and reviewing 5.1.London Secure Data Environment (SDE)

Chelsea and Westminster Hospital NHS Foundation Trust

ID 390: Identifying risk factors associated with subsequent mental health crisis for children and young people in North West London London Secure Data Environment (SDE)

Imperial College London (ICL)

ID 402: Economic evaluation of the Early Years Pilot Project in North West London London Secure Data Environment (SDE)

Brunel University London

ID 409: NWL Bi-Borough Evaluation Framework London Secure Data Environment (SDE)

NHS North West London CCG

ID 413: Evaluation of new approaches and investments in services to support diabetes care in North West London London Secure Data Environment (SDE)

Richford Gate Medical Practice

ID 421: Networked Data Lab: Topic 5 – Exploring waiting lists in NWL: the demographics of those waiting, and the impact of waiting, both on patients and the system London Secure Data Environment (SDE)

Imperial College Health Partners (ICHP)

ID 424: Multimorbidity patterns and unplanned health service use among children and young people in North West London London Secure Data Environment (SDE)

Imperial College London (ICL)

ID-442: Validation of Risk Models and Patient Triage NWL data London Secure Data Environment (SDE)

Imperial College Healthcare NHS Trust

ID-168: Extension: Supporting early feasibility for non-commercial studies in North West London London Secure Data Environment (SDE)

ICHNT

ID-219: Extension: Quality of secondary prevention following percutaneous coronary interventions in North West London London Secure Data Environment (SDE)

Royal Brompton & Harefield Hospitals NHS Trust

ID-458: Re-Defining Care for Patients with Advanced Heart Failure in North West London London Secure Data Environment (SDE)

Chelsea and Westminster Hospital NHS Foundation Trust

ID-466: Inclusiveness of NWL data recording London Secure Data Environment (SDE)

Imperial College London

ID-229: Extension: Mapping the clinical journey of patients with Chronic Kidney Disease (CKD)in North West London (NWL)London Secure Data Environment (SDE)

Imperial College Healthcare NHS Trust/ Imperial College London

ID-467: Evaluating the Impact of Virtual Care on the Safety and Efficacy of Diabetic Pregnancy Management in North West London London Secure Data Environment (SDE)

Imperial College London

ID-471: Surgery and advanced therapy patterns in inflammatory bowel disease, a retrospective population-based study in NWL London Secure Data Environment (SDE)

London North West University Healthcare NHS Trust

ID-474: Cost-modelling the introduction of pharmacotherapy in adult weight-management service pathways in Northwest London London Secure Data Environment (SDE)

ICHNT

ID-216: Investigating multimorbidity among patients with depression and the relationship with secondary care utilisation in Northwest London.London Secure Data Environment (SDE)

Imperial College London

ID-488: Evaluation of new approaches and investments in services to support diabetes care in North West London London Secure Data Environment (SDE)

Imperial College London

ID-483: using a whole systems data approach to monitor the changing health care burden of childhood bronchiolitis following introduction of RSV prophylaxis in Northwest London: a large linked clinical data study London Secure Data Environment (SDE)

Imperial College Healthcare NHS Trust

ID-294: Extension: JSNA and JSNA related projects for London Borough of Hounslow, including the Children and Young People Needs Assessment (additional user)London Secure Data Environment (SDE)

London Borough of Hounslow

ID-446: Extension Patient characteristics, health and social care resource utilisation and costs among community COVID-19 infections in North West London London Secure Data Environment (SDE)

Lane Clark & Peacock LLP

ID-249: Extension: The impact of COVID-19 on antibiotic prescribing in North West London London Secure Data Environment (SDE)

Imperial College London

ID-481: WorkWell NWL – Service Evaluation (Oct 2024 – June 2025)London Secure Data Environment (SDE)

Imperial College Healthcare NHS Trust

ID-480: Evaluating preterm birth phenotypes and risk factors in North West London London Secure Data Environment (SDE)

Chelsea and Westminster NHS Foundation Trust

ID-479: FIT-NWL: Using Primary Care Data to Track Sickness Absense in NWL London Secure Data Environment (SDE)

Imperial College Healthcare NHS Trust

ID-416: Evaluation of the accessibility of the Providing Assessment and Treatment for Children at Home (PATCH) service across North West London London Secure Data Environment (SDE)

Imperial College London

ID-132: Extension: Pilot intervention for young self-harm patients in NWL London Secure Data Environment (SDE)

Imperial College London

NIHR HIC – Colorectal Cancer Theme Imperial College Healthcare NHS Trust

Imperial College Healthcare NHS Trust

Telemedicine Of High Risk Cardiovascular Patients Post-ACS (TELE-ACS)Imperial College Healthcare NHS Trust

Imperial College Healthcare NHS Trust

Digital Alerting to Improve Sepsis Detection and Patient Outcomes in NHS Trusts (DiAlS)Imperial College Healthcare NHS Trust

Institute of Cancer Research

NLP and Pathway Modelling in Ovarian Cancer to Understand Inequalities Imperial College Healthcare NHS Trust

Imperial College Healthcare NHS Trust

Retrospective Validation of the AI Clinician Algorithm for Optimal Sepsis Treatment Imperial College Healthcare NHS Trust

Imperial College London

Imperial College Healthcare Tissue Bank Imperial College Healthcare NHS Trust

Imperial College London

Identifying the risk and true-incidence of in-hospital VTE using electronic healthcare records Imperial College Healthcare NHS Trust

Imperial College London

NIHR HIC – Viral Hepatitis Theme Imperial College Healthcare NHS Trust

Imperial College Healthcare NHS Trust

ICHT Inclusive Recruitment Analysis Imperial College Healthcare NHS Trust

Imperial College London

Analysis of longitudinal laboratory data to develop models for the assessment, diagnosis, and prediction of bacteremia, bloodstream infection, and sepsis Imperial College Healthcare NHS Trust

Imperial College London

Using LLMs to generate hospital discharge summaries: a feasibility study Imperial College Healthcare NHS Trust

Imperial College London

Evaluating the Impact of Disruption to Nursing Rosters on Patient Care in Imperial College Healthcare NHS Trust Hospitals (IDNRPC)Imperial College Healthcare NHS Trust

Imperial College London

A retrospective cohort study to evaluate the association between normalized brain volume loss and healthcare resource utilization in patients with relapsing-remitting multiple sclerosis Imperial College Healthcare NHS Trust

Imperial College London

A double-blind, randomized, placebo-controlled trial in participants with chronic obstructive pulmonary disease (COPD) to evaluate the impact of vapendavir on the development of lower respiratory tract symptoms following rhinovirus challenge - IHKB Study Imperial College Healthcare NHS Trust

Imperial College Healthcare NHS Trust

Develop a machine learning algorithm to predict pressure injuries using de-identified patient data from iCARE Imperial College Healthcare NHS Trust

Imperial College London

Evaluating Venous Thromboembolism (VTE) Risk Assessment Pathways & Using Large Language Models to Identify VTE Events: A Feasibility Study Imperial College Healthcare NHS Trust

Imperial College London

Investigating Trends in Antimicrobial Resistance Among the Key Bacterial Pathogens Causing Infections in Intensive Care Units Across Imperial College Healthcare NHS Trust Cites During the SARS-CoV-2 Pandemic Imperial College Healthcare NHS Trust

Imperial College London

Develop a machine learning algorithm to predict Surgical Site Infections (SSI) using de-identified patient data from iCARE Imperial College Healthcare NHS Trust

Imperial College London

Targeting 18kDa Translocator Protein (TSPO) to improve brain endothelial cell function in cerebral small vessel disease - IHKB Study Imperial College Healthcare NHS Trust

Imperial College London

Development of SMART PATH Sepsis Trial Protocol Imperial College Healthcare NHS Trust

Imperial College London

ICSAVA - Understanding the role of inhaled corticosteroids (ICS) on vascular ageing and cardiovascular comorbidities in COPD - IHKB Study Imperial College Healthcare NHS Trust

Imperial College London

CHEMOBRAIN - Health Volunteer Sub-Study - IHKB Study Imperial College Healthcare NHS Trust

Imperial College London

Modulation of Endothelial Function in Alzheimer’s Disease by 18kDa Translocator Protein - Trying to Improve Brain Blood Flow in Alzheimer's Disease - IHKB Study Imperial College Healthcare NHS Trust

Imperial College London

The causal role of neural activity in neurodegeneration (CR-NAND) - IHKB Study Imperial College Healthcare NHS Trust

Imperial College London

ACCESS@ICL: An All-inclusive Cohort for the Comprehensive Examination of Sporadic Small Vessel Disease @ Imperial College London - IHKB Study Imperial College Healthcare NHS Trust

Imperial College London

Develop a machine learning algorithm to predict in hospital falls using de-identified patient data from iCARE Imperial College Healthcare NHS Trust

Imperial College London

A Phase IIa, double-blind, randomized, placebo-controlled trial in participants with asthma to evaluate the impact of intranasal ETH47 on the development of lower respiratory tract symptoms following rhinovirus challenge - IHKB Study Imperial College Healthcare NHS Trust

Imperial College London

ID-491: Evaluating the Care Information Exchange to Improve Patient Experience and Care Pathways in North West London London Secure Data Environment (SDE)

Patients Know Best

ID-494: London Ambulance Service demand data – Falls prevention London Secure Data Environment (SDE)

Westminster City Council

ID-194: Extension: Flagging of the West London personality disorder patient data into the WSIC data set and extraction of data on personality disorder cohort in North West London London Secure Data Environment (SDE)

West London Health NHS Trust

ID-497: London SDE’s NHS chronic weight management service provision & health systems capacity: a feasibility study London Secure Data Environment (SDE)

Imperial College Healthcare NHS Trust

ID-496: Statin Use and Prediabetes Risk: Prediction Model Development and Causal Inference Using Data from the Whole Systems Integrated Care Database, Northwest London London Secure Data Environment (SDE)

Imperial College London

ID-464: Networked Data Lab: Topic 6 – Exploring the impact of living with damp & mould / in fuel poverty on adverse health outcomes, healthcare resource usage and costs across NWL London Secure Data Environment (SDE)

Imperial College London

ID-501: Air Quality and Health Westminster London Secure Data Environment (SDE)

Westminster City Council

ID-327: ICHP Feasibility Searches London Secure Data Environment (SDE)

Imperial College Health Partners

ID-503: Electronic Health Record Analysis and Longitudinal Data Analysis to Understand the Risk Factors in Dementia London Secure Data Environment (SDE)

Imperial College London

ID-427: Detecting and treating CKD at the earliest stages London Secure Data Environment (SDE)

Imperial College Healthcare NHS Trust

ID-412: Inequalities in mental healthcare services: A mixed-method approach identifying actionable measures to monitor inequalities and inform improvement efforts London Secure Data Environment (SDE)

Imperial College London

ID-506: The potential health and resource use impact of alternative strategies for managing obesity London Secure Data Environment (SDE)

Imperial College London

ID–507: Characterising Cardiovascular Kidney Metabolic (CKM) health profiles in North West London London Secure Data Environment (SDE)

Imperial College London

ID-352: North West London Integrated Care Board (ICB) Research and Innovation Project London Secure Data Environment (SDE)

Imperial College Health Partners

ID-508: NIPP CKD Evaluation London Secure Data Environment (SDE)

Imperial College Health Partners

ID-509: 0 to 5 years development data exploration London Secure Data Environment (SDE)

Westminter City Council

ID-510: Evaluation of Colorectal Endoscopic (EMR/ESD) and Surgical Resection Activity in North West London: A WSIC Service Evaluation London Secure Data Environment (SDE)

Imperial College Healthcare NHS Trust

ID-486: Clinical Impact and healthcare utilisation of a digital long-term condition of self-management platforms (Know Diabetes / Presenting Diabetes / MyHealth London): A mixed-methods evaluation London Secure Data Environment (SDE)

NHS Greater Glasgow and Clyde / MyWay Digital Health

ID 148: Extension Request: Characterizing and Preventing Multimorbidity in NW London London Secure Data Environment (SDE)

Imperial College Healthcare NHS Trust

ID-252: Extension: Grenfell Bereaved and Survivors Population Health Monitoring London Secure Data Environment (SDE)

Westminter City Council

ID-448: Extension: Clinical Outcomes and Cost of OSA in OUS Settings London Secure Data Environment (SDE)

Imperial College Healthcare NHS Trust

ID-476: Extension: Patient Safety in access and delivery of perinatal care amongst ethnic diverse communities in Northwest London - A Mixed Methods Study London Secure Data Environment (SDE)

Imperial College London

ID-512: A regional population-based study of autism, ADHD, and mental health across the life course in England London Secure Data Environment (SDE)

Cambridge University Hospitals NHS Foundation Trust

ID-513: Identifying where delays have the greatest impact: timing and outcome implications in the elective surgical pathway in NWL London Secure Data Environment (SDE)

Imperial College Healthcare NHS Trust

ID-183: Extension: Estimating inequalities in unmet clinical need in patients with obesity London Secure Data Environment (SDE)

Lane Clark & Peacock (LCP)

ID-514: London Neighbourhood Model London Secure Data Environment (SDE)

PPL

ID-444: How are the health and social care costs of neurodegenerative diseases including dementia, multiple sclerosis, Parkinson’s disease, Huntington’s disease and motor neurone disease) impacted by inequality and ethnicity?London Secure Data Environment (SDE)

University College London

ID-452: Exploring the impact of family size on child health outcomes and service use in North West London: An analysis to inform local service provision and national welfare policy London Secure Data Environment (SDE)

Imperial College London

ID-505: Improve care for patients with Gram-negative bloodstream infections (GNBSI) in North West London London Secure Data Environment (SDE)

Imperial College London

ID-515: Exploratory Analysis and modelling of risk rating for proactive care planning in central London general practice London Secure Data Environment (SDE)

GP Federation

ID-516: Economic Impacts of autism London Secure Data Environment (SDE)

Westminter City Council

ID-517: Demand Planning (Sustainable Yield Model for Planned Developments)London Secure Data Environment (SDE)

Westminter City Council

ID-518: Moderna COVID-19 London Secure Data Environment (SDE)

Imperial College Health Partners

Associated analysis scripts, tools and software

(13)

Atrial Fibrillation (AF) Population Health Dashboard London Secure Data Environment (SDE)

Taryn Aspeling

Bowel Cancer Screening Dashboard London Secure Data Environment (SDE)

Taryn Aspeling

Breast Cancer Screening Dashboard London Secure Data Environment (SDE)

Taryn Aspeling

Cervical Cancer Screening Dashboard London Secure Data Environment (SDE)

Taryn Aspeling

COPD Population Health Dashboard London Secure Data Environment (SDE)

Taryn Aspeling

COVID Vaccination Dashboard London Secure Data Environment (SDE)

Taryn Aspeling

Diabetes Population Health Dashboard London Secure Data Environment (SDE)

Taryn Aspeling

Flu Vaccination Population Dashboard London Secure Data Environment (SDE)

Taryn Aspeling

Foot Care Dashboard London Secure Data Environment (SDE)

Taryn Aspeling

Frailty Patient Dashboard London Secure Data Environment (SDE)

Taryn Aspeling

HIU Patient Summary Dashboard London Secure Data Environment (SDE)

Taryn Aspeling

Hypertension Dashboard London Secure Data Environment (SDE)

Taryn Aspeling

LADS Patient Cohort Dashboard London Secure Data Environment (SDE)

Taryn Aspeling

Publications

(3)

The MR-Base platform supports systematic causal inference across the human phenome.NIHR Bristol Biomedical Research Centre

Hemani G, Zheng J, Elsworth B, Wade KH, Haberland V, Baird D, Laurin C, Burgess S, Bowden J, Langdon R, Tan VY, Yarmolinsky J, Shihab HA, Timpson NJ, Evans DM, Relton C, Martin RM, Davey Smith G, Gaunt TR, Haycock PC.

Mendelian randomization analysis of labor anesthesia and adverse neonatal outcomes.NIHR Bristol Biomedical Research Centre

Qu D, Zhang Y, Wang S, Dou H, Xiu Y, Dong Y, Wang Y, Yang L.

Association Between Different Types of Lipids and Alzheimer's Disease, Parkinson's Disease, and Epilepsy: A Mendelian Randomization and Bioinformatics Analysis.NIHR Bristol Biomedical Research Centre

Zhang J, Song A, Xiang Y, Liu J, Li B, Li X.

Collections

(16)

NIHR Imperial BRC - Digital Health Theme

NIHR Imperial BRC Biomedical Engineering

NIHR Imperial BRC Brain Sciences

NIHR Imperial BRC Cardiovascular

NIHR Imperial BRC Digestive Diseases

NIHR Imperial BRC Immunology

NIHR Imperial BRC Infection &amp; Antimicrobial Resistance

NIHR Imperial BRC Metabolic and Endocrine

NIHR Imperial BRC Molecular Phenotyping

NIHR Imperial BRC Multiple Long-Term Conditions

NIHR Imperial BRC Pregnancy and Prematurity

NIHR Imperial BRC Respiratory

NIHR Imperial BRC Social, Genetic and Environmental Determinants of Health

NIHR Imperial BRC Surgery and Cancer

NIHR Imperial BRC Imperial Health Knowledge bank facility

NIHR Imperial BRC Imperial Secure Data Environment